Hello hello hello, it’s me Amy. Life is different now, a life long spinal cord tumor left my body not as useful as it once was. I can walk, move and use my body, but it hurts everyday, every minute of forever along with numb areas, weakness and neuropathies. I am working on finding my way with the support of my family. Differently abled we like to say around here, just ask my nephew, he will tell you.

What is there to know about me? I’m single and have two boys who are 17 and 14. We will call the 17 year old J and we will refer to the 14 as AJ, it feels weird to put my kids name out there for the world to see. I dig artsy stuff; creating, crafting, organizing, making and wearing jewelry, letting my sis color my hair variety of colors, chocolate and let’s face it food is delicious, reading multiple books at a time which means the library is my best friend and my television playing in the background is a probably too much a part of my life but I have no plan to put up boundaries. Essentially, I need to be doing something with my hands to keep my soul satisfied. 

I am into art, I did sculpture; as in welding, metal work, stone carving but not ceramics- I know some people hear sculpture and think ceramics. I have painted and worked on scenery for student productions at JCCC as well as other places-loved every minute of those experiences. Unfortunately, I cannot just do what I love whenever I want to; this body of mine cannot handle all it used to. I am happy, loved and have more than others. 

I want to share my experience with people to bring a better awareness to the struggles of those living in chronic pain and with a spinal cord injury. Although my SCI didn’t come by way of an accident it is no less real. I am more lucky than many. I was not left paralyzed, for that I am thankful.

 

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